We are pleased to highlight the recent publication by Anna Bangiri in BMJ Open: Outcomes of patient and public involvement in the development of the Cognitive Decline after Brain Radiosurgery (CoDe B-Rad) study: refining the research question and methodology.
Anna’s involvement also extended to another important aspect of the project—highlighting the role of Patient and Public Involvement (PPI) in the development of the CoDe B-Rad study protocol, which investigates cognitive side effects following stereotactic radiosurgery (SRS) for brain tumours.
PPI contributors—patients and carers with lived experience of brain radiotherapy—identified the need to better understand and quantify cognitive and quality-of-life effects of treatment. While group participation proved challenging, the research team adapted by using online questionnaires, one-to-one interviews, and support group engagement. Feedback directly influenced methodological decisions, including the selection of validated cognitive and QoL assessment tools (MoCA, EORTC QLQ-C30, and BN20) and the delivery format of study activities. Although full coproduction wasn’t feasible due to the vulnerability of the patient population, the input provided was essential in shaping a more responsive and patient-sensitive protocol.
This publication reflects Anna’s growing expertise in patient-centered outcomes research and her commitment to improving decision quality in clinical practice. We are proud to see our DTP students engaging in research with tangible implications for policy, practice, and patient care.
Congratulations to Anna and the entire study team on this contribution to the evidence base supporting shared decision-making in healthcare.
🗓️ Published: 26 June 2025
🔗 Read the full article here